Bartha Maria Knoppers, PhD, AdE, OC, OQ, FRSC, FCAHS, McGill University, Canada
Eric Meslin, qualification, affiliation, country
BMC Medical Genomics is calling for submissions to our Collection on Ethical, legal, and social implications (ELSI) of genomic research.
This Collection aims to highlight research focused on assessing the responsible and equitable use of genomics data in medical research.
Bartha Maria Knoppers, PhD, AdE, OC, OQ, FRSC, FCAHS, McGill University, Canada
Bartha Maria Knoppers is Distinguished James McGill Professor Emerita and was the Canada Research Chair in Law and Medicine (2001-2024). Holder of 5 Honorary Degrees, she is the Founding Director of the Centre of Genomics and Policy of the Faculty of Medicine and Health Sciences at McGill University. She is internationally recognized for her outstanding contributions on the legal and ethical aspects of genetics, genomics and emerging biotechnologies as well as the rights of children. She is a member of the Board of Directors of the Global Alliance for Genomics and Health (GA4GH) and was the Co-Chair of the Ethics and Governance Working Group for the Human Cell Atlas (HCA) until 2024.
[GUEST EDITOR 2, QUALIFICATION, AFFILIATION, COUNTRY][GE 2 BIO]
BMC Medical Genomics is calling for submissions to our Collection on Ethical, legal, and social implications (ELSI) of genomic research.
Genomic research holds immense potential to transform medicine and public health, but also presents significant ethical, legal, and social challenges.
Ethical concerns revolve around privacy, informed consent, and the risk of genetic discrimination. Legal considerations around data protection and privacy are crucial to prevent discrimination against individuals in healthcare settings. Socially, the integration of genomic technologies can shape public perceptions, influence reproductive and lifestyle choices, and may even exacerbate health disparities.
Addressing these implications is crucial to ensure genomic technologies are used responsibly and equitably. This approach will help protect individuals' personal genomic data from misuse and ensure that the benefits of genomic research are accessible to all, ultimately leading to improved health outcomes and more effective medical treatments.
This Collection aims to highlight research focused on the ethical, legal, and social implications of genomic research. We invite submissions that explore the integration of ELSI into genomic studies, and the implications for public health, policy. Topics of interest include, but are not limited to, privacy and data protection, informed consent, genetic discrimination, and the impact of genomic research on vulnerable populations.
All manuscripts submitted to this journal, including those submitted to collections and special issues, are assessed in line with our editorial policies and the journal’s peer review process. Reviewers and editors are required to declare competing interests and can be excluded from the peer review process if a competing interest exists.
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There are currently no articles in this collection.
This Collection welcomes submission of original Research Articles, Database, Software, Case Report, Study protocol, Matters Arising and Comment. Should you wish to submit a different article type, please read our submission guidelines to confirm that type is accepted by the journal. Articles for this Collection should be submitted via our submission system, Snapp. During the submission process you will be asked whether you are submitting to a Collection, please select "Ethical, legal, and social implications (ELSI) of genomic research" from the dropdown menu.
All manuscripts submitted to this journal, including those submitted to collections and special issues, are assessed in line with our editorial policies and the journal’s peer review process. Reviewers and editors are required to declare competing interests and can be excluded from the peer review process if a competing interest exists.